November 29, 2009

Keep the Important Stuff, But Leave Out All the Rest

I just heard for the first time the song "Leave out All The Rest", by Linkin Park and I had to share.
 
The song made me think of my Jodi James who was killed in a car accident on September 5th.  She was a true leader and disability advocate who was willing to stand up for the rights of others with and without disabilities.  She sacrificed a great deal to try and make things better for people with disabilities in the state of Indiana.  But Jodi stood her ground and called for true empowerment.
 
Jodi's tomb stone reads as per her request: "I was just here for the party."  There is no doubt that Jodi James was here for the party, but the reality is she was here for quite a bit more.  Jodi lived a life that mattered, and she took every opportunity she could to ensure others would get the opportunity to do the same. To learn more see: Jodi James - A call for true empowerment  
 
 
 Jodi James headstone - picture of wheelchair and a ramp leading to heaven - Says I was just here for the party.
 
 
"Leave Out All The Rest"
By Linkin Park

I dreamed I was missing
You were so scared
But no one would listen
Cause no one else cared

After my dreaming
I woke with this fear
What am I leaving
When I'm done here

So if you're asking me
I want you to know

[Chorus]
When my time comes
Forget the wrong that I've done
Help me leave behind some
Reasons to be missed

And don't resent me
And when you're feeling empty
Keep me in your memory

Leave out all the rest
Leave out all the rest
[End Chorus]

Don't be afraid
I've taken my beating
I've shared what I made

I'm strong on the surface
Not all the way through
I've never been perfect
But neither have you

So if you're asking me
I want you to know

[Chorus]
When my time comes
Forget the wrong that I've done
Help me leave behind some
Reasons to be missed

Don't resent me
And when you're feeling empty
Keep me in your memory

Leave out all the rest
Leave out all the rest
[End Chorus]

Forgetting
All the hurt inside
You've learned to hide so well

Pretending
Someone else can come and save me from myself
I can't be who you are

[Chorus]
When my time comes
Forget the wrong that I've done
Help me leave behind some
Reasons to be missed

Don't resent me
And when you're feeling empty
Keep me in your memory

Leave out all the rest
Leave out all the rest

Forgetting
All the hurt inside
You've learned to hide so well

Pretending
Someone else can come and save me from myself
I can't be who you are
I can't be who you are



November 21, 2009

An advocate's frustration at a public hearing about transitioning people with disabilities out of state operated institution

 

 On Monday, November 16th, Boy, my blood got boiled when I attended a public hearing  regarding a state-operated    facility here in the Chicagoland area.

Governor Quinn announced that Illinois will be closing Howe Developmental Center by next April  because of poor conditions and abuse and neglect by staff.  The Illinois state legislature held a hearing about how to transition people successfully from Howe and back into the community.  The hearing was held by the Disability service Committee, made up of legislators who were pro-Howe.

 I was angered by the fact that 95 percent people in  the room were parents whose young  adults are at Howe, AFSCME union that represent the workers at Howe, and the workers themselves. They painted  rosy picture of this facility, how they genuinely care for the residents.

But when the disability advocates had their turn to speak, they were grilled by the committee. Members of  the committee hammered the state's Protection and Advocacy agency when  they reported 31 deaths within four years occurred at the facility.  They asked if anybody got prosecuted  and arrested for the deaths, and when the agency said no, one member  said deaths are natural!

 There were several occasions at this hearing when I rolled my eyes in disgust.  A legislator noticed displeasure and just smiled.  I was angered by the parents who testified, not the  residents, about how good the facility staff treated their "kids."  I was angered by the committee that embraced the parents and the workers by  their non-verbal communication.   I was angered how the majority in the room dismissed  the disability community voice calling for the closure for Howe by their jeers.  Perhaps the reason why I was most angered was that the general public just don't get  it when it comes to disability.  Yet, one day they could end up in a facility like Howe as a result of being disabled.  After all, 1 out of five people are disabled.

"I think we're doing a disservice to the most vulnerable by closing  Howe," said one of  the legislators.  "We're making a big  mistake."  Can it be the reason he said that was because the Howe is located  in his district, and that his district could lose jobs as a result of closing the facility?

 The reason I write this is to let readers be aware of the oppressors who want to stick us (people with disabilities) in nursing homes and institutions so easily.  I wonder if some day when these people face institutionalization if they will still be jeering at people like me.

November 19, 2009

Welcome - From newest Blog Author.

Welcome to Notes to the People the onecandream blog.  We appreciate your patience as we are remodeling onecandream and we hope that you continue to support us as we grow. Please come back often to see what is new. Also, feel free to provide us with input and share your ideas and suggestions.

I have been fortunate enough to be given the priviledge as a member of the onecandream community to share some of my thoughts, hopes, dreams, and opinions on this blog.  I am thinking that being the case you are probably wondering who I am.

Good Question.

I hope that as we get to know each other that I will be able to answer that question for you... but please give me time.  Like everyone who has worked hard and continues to work hard to make onecandream great -- I don't get paid for this...

 That is not me complaining, however, if onecandream is reading this... I would be happy to apply for a raise.  But seriously the reality is that what is important here is not me... it is you.

So as I embark on my first adventures in blogging, I hope you will join me.  Who knows it may be fun, and eventually after I have had some time to figure it out myself, perhaps I will be able to answer your question as to who I am.

Either way, I hope you sit back and enjoy the ride.   Please remember that the views I express are my own, and not necessarily the views of onecandream.com.

November 15, 2009

Remodeling happening at onecandream.com

Onecandream is remodeling and as you can see our blog has been redesigned.  Hopefully this will make things easier for our visitors and members of the onecandream community as they navigate our site.

 Don't worry, the changes are for the better, and the old blog has been archived.